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TitleWhat Do We Know About Women's Experiences of Living With Hepatitis C?
LanguageEnglish
File Size11.5 MB
Total Pages201
Document Text Contents
Page 1

What
 Do
 We
 Know
 About
 Women’s
 Experiences
 of
 Living
 

With
 Hepatitis
 C?
 
 
An
 Analysis
 of
 Canadian
 Women's
 Journey
 with
 
 

Hepatitis
 C
 Care
 

 

 

Sandra
 Mitchell
 
May
 2017
 


 

 

School
 of
 Public
 Health
 
Faculty
 of
 Medicine
 
University
 of
 Sydney
 


 

 

 

A
 thesis
 submitted
 in
 partial
 fulfillment
 of
 requirements
 
 
for
 the
 degree
 of
 Doctor
 of
 Philosophy
 


 

 

 

 

 

 

 

 

 

 

 
This
 is
 to
 certify
 that
 to
 the
 best
 of
 my
 knowledge,
 the
 content
 of
 this
 thesis
 is
 my
 
own
 work.
 This
 thesis
 has
 not
 been
 submitted
 for
 any
 degree
 or
 other
 purposes
 

 
Signature:
 


 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

 
Name:
 
 
 
 
 
 
 
 
 
 
 
 
 
 Sandra
 Mitchell

Page 2

ii

ABSTRACT
 

 
Background:
  The
  Hepatitis
  C
  virus
  (HCV)
  is
  a
  blood-­‐borne
  infection
  affecting
  an
 

estimated
 170
 million
 people
 worldwide
 including
 approximately
 250,000
 Canadians.
 

Untreated
  HCV
  can
  contribute
  to
  significant
  morbidity
  and
  mortality.
  Despite
  the
 

benefits
 of
 HCV
 care,
 there
 continues
 to
 be
 significant
 gaps
 in
 the
 uptake
 of
 services.

Purpose:
  This
  thesis
  explored
  Canadian
 women’s
  experiences
  of
  the
  journey
 with
 

HCV
 care
 from
 the
 perspective
 of
 the
 women,
 in
 order
 to
 promote
 care
 engagement,
 

improve
  patient-­‐provider
  relationships
  and
  deliver
  services
  that
  meet
  women’s
 

needs.

Methods:
  This
  study,
  inspired
  by
  grounded
  theory
  techniques,
  explored
  women’s
 

experience
  of
  living
  with
  HCV
  and
  factors
  influencing
  their
  journey
  with
  care.
 

Purposive
  and
  theoretical
  sampling
  across
  three
  Canadian
  provinces
  generated
 

interviews
 with
 25
 women.

Results:
 Three
 concepts
 were
 central
  to
 understanding
 women’s
  journey
 with
 HCV
 

care:
 1)
 The
 point
 of
 diagnosis
 shaped
 women’s
 journey
 with
 care
 through
 a)
 their
 

preparedness
 for
 a
 positive
 diagnosis,
 and
 b)
 the
 information/health
 education
 they
 

received;
 2)
 Women
  faced
  complex
 barriers
  to
  care
  -­‐
  (a)
  information
 provision,
 b)
 

family
  and
  caregiver
  responsibilities,
  c)
  relationship
  with
  healthcare
  provider,
  d)
 

active
  substance
  use
  and
  e)
  stigma
  and
  discrimination
  -­‐
  but
  often
  showed
 

inventiveness
 and
 determination
 to
 overcome
 them;
 
 3)
 Women
 saw
 their
 decision

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