Document Text Contents
Page 1
Grand Valley State University
[email protected]
Masters Theses Graduate Research and Creative Practice
2010
The Lived Experience: Pulmonary Arterial
Hypertension and Intravenous Prostaglandin
Therapy
Phyllis D. Boone
Grand Valley State University
Follow this and additional works at: http://scholarworks.gvsu.edu/theses
Part of the Nursing Commons
This Thesis is brought to you for free and open access by the Graduate Research and Creative Practice at [email protected] It has been accepted
for inclusion in Masters Theses by an authorized administrator of [email protected] For more information, please contact
[email protected]
Recommended Citation
Boone, Phyllis D., "The Lived Experience: Pulmonary Arterial Hypertension and Intravenous Prostaglandin Therapy" (2010). Masters
Theses. 659.
http://scholarworks.gvsu.edu/theses/659
http://scholarworks.gvsu.edu?utm_source=scholarworks.gvsu.edu%2Ftheses%2F659&utm_medium=PDF&utm_campaign=PDFCoverPages
http://scholarworks.gvsu.edu/theses?utm_source=scholarworks.gvsu.edu%2Ftheses%2F659&utm_medium=PDF&utm_campaign=PDFCoverPages
http://scholarworks.gvsu.edu/grcp?utm_source=scholarworks.gvsu.edu%2Ftheses%2F659&utm_medium=PDF&utm_campaign=PDFCoverPages
http://scholarworks.gvsu.edu/theses?utm_source=scholarworks.gvsu.edu%2Ftheses%2F659&utm_medium=PDF&utm_campaign=PDFCoverPages
http://network.bepress.com/hgg/discipline/718?utm_source=scholarworks.gvsu.edu%2Ftheses%2F659&utm_medium=PDF&utm_campaign=PDFCoverPages
http://scholarworks.gvsu.edu/theses/659?utm_source=scholarworks.gvsu.edu%2Ftheses%2F659&utm_medium=PDF&utm_campaign=PDFCoverPages
mailto:[email protected]
Page 2
THE LIVED EXPERIENCE: PULMONARY ARTERIAL HYPERTENSION AND
INTRAVENOUS PROSTAGLANDIN THERAPY
By
Phyllis D. Boone
A THESIS
Submitted to
Grand Valley State University
In partial fulfillment of the requirements for the
Degree of
MASTER OF SCIENCE IN NURSING
2010
Kirkhof College of Nursing
Thesis Committee Members:
Cynthia Coviak, Ph.D., R.N, CNE
Patricia Schafer, Ph.D., R.N.
Linda Scott, Ph.D., R.N, NEA-BC, FAAN
Kristina Simmons, LMSW
Page 72
of these phenomena, enabling us to more fully focus on and support what matters most to
our patients.
Completing a research project can be a difficult hut rewarding endeavor. There
can also be disappointments, including research delays and recruitment failures.
Obstacles to recruitment and strategies for overcoming these obstacles were discussed. It
is hoped that by sharing this experience, others investigators will have awareness not only
of the challenges of participant recruitment but of some workable strategies to help
ensure success in research efforts.
60
Page 73
APPENDICES
Page 144
Roncesvalles, A., Lee, F. W., Camamo, J., & Priestley, G. (2008). Patient safety
challenges in treprostinil therapy. MeriSwrg 17, 101-106.
Rothstein, M. A. (2005). Currents in contemporary ethics; Research privacy under
HIPAA and the common rule. The Journal o f Law, Medicine & Ethics, Spring,
154-159. Retrieved December 12, 2010 from the CINAHL Plus database.
Rubenfire, M., Lippo, G., Bodini, B. D., Blasi, F., Allegra, L., & Bossone, E. (2009).
Evaluating health-related quality of life, work ability, and disability in pulmonary
arterial hypertension: An unmet need. Chest, 136, 597-603. doi: 10.1378/chest.08-
1260
Rubin, L. J., & Hopkins, W. (2007, May). Overview of pulmonary hypertension.
UpToDate. Retrieved October 11, 2007 from http://www.utdol.com with
permission.
Sakalys, J. A. (2003). Restoring the patient’s voice: The therapeutics of illness narratives.
Journal of Holistic Nursing, 21, 228-241.
Sawicki, M. (2006). Edmund Husserl (1859-1938). In The Internet Encyclopedia of
Philosophy. Retrieved December 4, 2008 from: http://www.iep.utm.edu
Schirm, V. (2009). Quality of life. In P. D. Larsen & I. Morof-Lubkin (Eds ), Chronic
illness: Impact and intervention (7^ ed ), (pp. 139-147). Sudbury, MA: Jones &
Bartlett
Seidman, I. (2006). Interviewing as qualitative research: A guide for researchers
in education and the social sciences (3rd ed.). New York: Teacher's College
Press.
Shafazand, S., Goldstein, M. K., Doyle, R. L., Hlatky, M. A., & Gould, M. K. (2004).
Health-related quality of life in patients with pulmonary arterial hypertension.
[Electronic Version]. Chest, 126, 1452-1459. Retrieved September 28, 2008 from
the Academic Search Premier database.
Simonneau, G., Galie, N. Rubin, L. J., Langleben, D., Seeger, W., & Domenighetti, G.,
et al. (2004). Clinical classification of pulmonary hypertension. Journal of the
American College o f Cardiology, 43, Supplement, doi:
10.1016/j.jacc.2004.02.037
Sitbon, O., Humbert, M., Nunes, H , Parent, F., Garcia, G., & Hervé, P., et al. (2002).
Long-term intravenous epoprostenol infusion in primary pulmonary
hypertension: Prognostic factors and survival. Journal o f the American
College of Cardiology,40, 780-788. Retrieved September 30, 2009 from the
Science Direct database.
115
http://www.utdol.com
http://www.iep.utm.edu
Page 145
Steinke, E. (2004). Research ethics, informed consent, and participant recruitment.
Clinical Nurse Specialist, 18, 88-97. Retrieved December 10, 2010 from
[email protected] OVID at Grand Valley State University
Streubert-Speziale, H. J., & Carpenter, D. R. (2007). Qualitative research in
nursing (4^ ed.). Philadelphia: Lippincott Williams & Wilkins
Swearingen, P., & Hicks-Keen, J. (2001). Manual of critical care nursing: Nursing
interventions and collaborative management (4* ed.). Philadelphia: Mosby
Taichman, D. B., Shin, J., Hud, L., Archer-Chicko, C., Kaplan, S., & Sager, J. S.,
et.al. (2005). Health-related quality of life in patients with pulmonary arterial
hy^QxXQmion. Respiratory Research, 6. doi: 10.1186/1465-9921-6-92
Traiger, G. L. (2007). Pulmonary arterial hypertension [Electronic Version]. Critical
Care Nursing Quarterly, 30, 20-41. Retrieved September 28, 2008 from the
CINAHL Plus database.
Watson, J. (2008). Nursing: The philosophy and science o f caring (Revised ed.).
Boulder, CO: University Press of Colorado.
Wertz, F. J. (1985). Method and findings in a phenomenological psychological study
of a complex life event: Being criminally victimized. In A. Giorgi (Ed ),
Phenomenology and Psychological Research. Pittsburgh, PA: Duquesne
University Press.
White, J., Hopkins, R.O., Glissmeyer, E.W., Kitterman, N., & Elliott, C.G. (2006)
Cognitive, emotional, and quality of life outcomes in patients with pulmonary
diriQX\à\\\yçQViQnsion. Respiratory Research, 7. doi: 10.1186/1465-9921-7-55
Widlitz, A. C., McDevitt, S., Ward, G. R., & Krichman, A. (2007). Practical aspects
of continuous intravenous treprostinil therapy. Critical Care Nurse, 27, 41-
50.
Wolf, M. S., & Bennett, C. L. (2005). Local perspective of the impact of the HIPAA
privacy rule on research. Cancer, 70(5,474-479. doi: 10.1002/cncr.21599
Wryobeck, J. M., Lippo, G., McLaughlin, V., Riba, M., & Rubenfire, M. (2007).
Psychosocial aspects of pulmonary hypertension: A review. Psychosomatics, 48,
467-475. Retrieved June 6, 2010 from: http : //psv. ps vchi atryonli ne .org
116
Grand Valley State University
[email protected]
Masters Theses Graduate Research and Creative Practice
2010
The Lived Experience: Pulmonary Arterial
Hypertension and Intravenous Prostaglandin
Therapy
Phyllis D. Boone
Grand Valley State University
Follow this and additional works at: http://scholarworks.gvsu.edu/theses
Part of the Nursing Commons
This Thesis is brought to you for free and open access by the Graduate Research and Creative Practice at [email protected] It has been accepted
for inclusion in Masters Theses by an authorized administrator of [email protected] For more information, please contact
[email protected]
Recommended Citation
Boone, Phyllis D., "The Lived Experience: Pulmonary Arterial Hypertension and Intravenous Prostaglandin Therapy" (2010). Masters
Theses. 659.
http://scholarworks.gvsu.edu/theses/659
http://scholarworks.gvsu.edu?utm_source=scholarworks.gvsu.edu%2Ftheses%2F659&utm_medium=PDF&utm_campaign=PDFCoverPages
http://scholarworks.gvsu.edu/theses?utm_source=scholarworks.gvsu.edu%2Ftheses%2F659&utm_medium=PDF&utm_campaign=PDFCoverPages
http://scholarworks.gvsu.edu/grcp?utm_source=scholarworks.gvsu.edu%2Ftheses%2F659&utm_medium=PDF&utm_campaign=PDFCoverPages
http://scholarworks.gvsu.edu/theses?utm_source=scholarworks.gvsu.edu%2Ftheses%2F659&utm_medium=PDF&utm_campaign=PDFCoverPages
http://network.bepress.com/hgg/discipline/718?utm_source=scholarworks.gvsu.edu%2Ftheses%2F659&utm_medium=PDF&utm_campaign=PDFCoverPages
http://scholarworks.gvsu.edu/theses/659?utm_source=scholarworks.gvsu.edu%2Ftheses%2F659&utm_medium=PDF&utm_campaign=PDFCoverPages
mailto:[email protected]
Page 2
THE LIVED EXPERIENCE: PULMONARY ARTERIAL HYPERTENSION AND
INTRAVENOUS PROSTAGLANDIN THERAPY
By
Phyllis D. Boone
A THESIS
Submitted to
Grand Valley State University
In partial fulfillment of the requirements for the
Degree of
MASTER OF SCIENCE IN NURSING
2010
Kirkhof College of Nursing
Thesis Committee Members:
Cynthia Coviak, Ph.D., R.N, CNE
Patricia Schafer, Ph.D., R.N.
Linda Scott, Ph.D., R.N, NEA-BC, FAAN
Kristina Simmons, LMSW
Page 72
of these phenomena, enabling us to more fully focus on and support what matters most to
our patients.
Completing a research project can be a difficult hut rewarding endeavor. There
can also be disappointments, including research delays and recruitment failures.
Obstacles to recruitment and strategies for overcoming these obstacles were discussed. It
is hoped that by sharing this experience, others investigators will have awareness not only
of the challenges of participant recruitment but of some workable strategies to help
ensure success in research efforts.
60
Page 73
APPENDICES
Page 144
Roncesvalles, A., Lee, F. W., Camamo, J., & Priestley, G. (2008). Patient safety
challenges in treprostinil therapy. MeriSwrg 17, 101-106.
Rothstein, M. A. (2005). Currents in contemporary ethics; Research privacy under
HIPAA and the common rule. The Journal o f Law, Medicine & Ethics, Spring,
154-159. Retrieved December 12, 2010 from the CINAHL Plus database.
Rubenfire, M., Lippo, G., Bodini, B. D., Blasi, F., Allegra, L., & Bossone, E. (2009).
Evaluating health-related quality of life, work ability, and disability in pulmonary
arterial hypertension: An unmet need. Chest, 136, 597-603. doi: 10.1378/chest.08-
1260
Rubin, L. J., & Hopkins, W. (2007, May). Overview of pulmonary hypertension.
UpToDate. Retrieved October 11, 2007 from http://www.utdol.com with
permission.
Sakalys, J. A. (2003). Restoring the patient’s voice: The therapeutics of illness narratives.
Journal of Holistic Nursing, 21, 228-241.
Sawicki, M. (2006). Edmund Husserl (1859-1938). In The Internet Encyclopedia of
Philosophy. Retrieved December 4, 2008 from: http://www.iep.utm.edu
Schirm, V. (2009). Quality of life. In P. D. Larsen & I. Morof-Lubkin (Eds ), Chronic
illness: Impact and intervention (7^ ed ), (pp. 139-147). Sudbury, MA: Jones &
Bartlett
Seidman, I. (2006). Interviewing as qualitative research: A guide for researchers
in education and the social sciences (3rd ed.). New York: Teacher's College
Press.
Shafazand, S., Goldstein, M. K., Doyle, R. L., Hlatky, M. A., & Gould, M. K. (2004).
Health-related quality of life in patients with pulmonary arterial hypertension.
[Electronic Version]. Chest, 126, 1452-1459. Retrieved September 28, 2008 from
the Academic Search Premier database.
Simonneau, G., Galie, N. Rubin, L. J., Langleben, D., Seeger, W., & Domenighetti, G.,
et al. (2004). Clinical classification of pulmonary hypertension. Journal of the
American College o f Cardiology, 43, Supplement, doi:
10.1016/j.jacc.2004.02.037
Sitbon, O., Humbert, M., Nunes, H , Parent, F., Garcia, G., & Hervé, P., et al. (2002).
Long-term intravenous epoprostenol infusion in primary pulmonary
hypertension: Prognostic factors and survival. Journal o f the American
College of Cardiology,40, 780-788. Retrieved September 30, 2009 from the
Science Direct database.
115
http://www.utdol.com
http://www.iep.utm.edu
Page 145
Steinke, E. (2004). Research ethics, informed consent, and participant recruitment.
Clinical Nurse Specialist, 18, 88-97. Retrieved December 10, 2010 from
[email protected] OVID at Grand Valley State University
Streubert-Speziale, H. J., & Carpenter, D. R. (2007). Qualitative research in
nursing (4^ ed.). Philadelphia: Lippincott Williams & Wilkins
Swearingen, P., & Hicks-Keen, J. (2001). Manual of critical care nursing: Nursing
interventions and collaborative management (4* ed.). Philadelphia: Mosby
Taichman, D. B., Shin, J., Hud, L., Archer-Chicko, C., Kaplan, S., & Sager, J. S.,
et.al. (2005). Health-related quality of life in patients with pulmonary arterial
hy^QxXQmion. Respiratory Research, 6. doi: 10.1186/1465-9921-6-92
Traiger, G. L. (2007). Pulmonary arterial hypertension [Electronic Version]. Critical
Care Nursing Quarterly, 30, 20-41. Retrieved September 28, 2008 from the
CINAHL Plus database.
Watson, J. (2008). Nursing: The philosophy and science o f caring (Revised ed.).
Boulder, CO: University Press of Colorado.
Wertz, F. J. (1985). Method and findings in a phenomenological psychological study
of a complex life event: Being criminally victimized. In A. Giorgi (Ed ),
Phenomenology and Psychological Research. Pittsburgh, PA: Duquesne
University Press.
White, J., Hopkins, R.O., Glissmeyer, E.W., Kitterman, N., & Elliott, C.G. (2006)
Cognitive, emotional, and quality of life outcomes in patients with pulmonary
diriQX\à\\\yçQViQnsion. Respiratory Research, 7. doi: 10.1186/1465-9921-7-55
Widlitz, A. C., McDevitt, S., Ward, G. R., & Krichman, A. (2007). Practical aspects
of continuous intravenous treprostinil therapy. Critical Care Nurse, 27, 41-
50.
Wolf, M. S., & Bennett, C. L. (2005). Local perspective of the impact of the HIPAA
privacy rule on research. Cancer, 70(5,474-479. doi: 10.1002/cncr.21599
Wryobeck, J. M., Lippo, G., McLaughlin, V., Riba, M., & Rubenfire, M. (2007).
Psychosocial aspects of pulmonary hypertension: A review. Psychosomatics, 48,
467-475. Retrieved June 6, 2010 from: http : //psv. ps vchi atryonli ne .org
116
