Download Living With Cancer PDF

TitleLiving With Cancer
File Size8.1 MB
Total Pages209
Table of Contents
What Is Cancer?
Causes of Cancer: What Do We Know?
Your Genetic Blueprint: What Are Your Risks?
Types of Cancer Most Common in Teens
If You’ve Been Diagnosed
Radiation Treatment: What to Expect
Chemotherapy Treatment: What to Expect
Preventing Cancer: How You Can Live a Healthy Life
When Someone You Love Has Cancer
Paying for Care
Appendix 1
Appendix 2
Appendix 3
Appendix 4
Read More About It
Document Text Contents
Page 2



Page 104

Appendix 1 97

(212) 838-3029
(800) 365-1336
Provides eligible transplant candidates with fi nancial assistance

limited to helping defray the cost of ancillary services needed to
ensure proper care during the transplant procedure, as well as in
pre- and post-transplant treatment phases.

Bone Marrow Transplant Family Support Network
P.O. Box 845
Avon, CT 06001
(800) 826-9376
A national telephone support network for patients and their families.

Services: Referrals; BMT information; counseling; children’s
services; health insurance information. The network answers
questions raised by the person calling and will connect newly
diagnosed patients with a recovered BMT patient who is the same
age, has the same diagnosis, stage of disease, etc.

National Bone Marrow Transplant Link
20411 West 12 Mile Road, Suite 108
Southfi eld, MI 48076
(800) 546-5268
[email protected]
This group operates a 24-hour toll-free number and provides peer

support to bone marrow transplant (BMT) patients and their
families. It also serves as an information center for prospective
BMT patients as well as a resource for health professionals.
Educational publications, brochures, and videos are available.
Staff can respond to calls in Spanish.

National Marrow Donor Program (NMDP)
3001 Broadway Street NE, Suite 500
Minneapolis, MN 55413-1753
(612) 627-5800
(800) 627-7692
The National Marrow Donor Program, funded by the federal

government, was created to improve the effectiveness of the
search for bone marrow donors. It keeps a registry of potential
bone marrow donors and provides free information on bone
marrow transplantation, peripheral blood stem cell transplant,

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98 Living with Cancer

and unrelated donor stem cell transplant, including the use of
umbilical cord blood. The NMDP’s Offi ce of Patient Advocacy
assists transplant patients and their physicians through the donor
search and transplant process by providing information, referrals,
support, and advocacy.

American Brain Tumor Association (ABTA)
2720 River Road
Des Plaines, IL 60018
(847) 827-9910
(800) 886-2282
[email protected]
The ABTA funds brain tumor research and provides information to

help patients make educated decisions about their health care. The
ABTA offers printed materials about the research and treatment
of brain tumors and provides listings of physicians, treatment
facilities, and support groups throughout the country. A limited
selection of Spanish-language publications is available.

Brain Tumor Foundation for Children, Inc. (BTFC)
1835 Savoy Drive, Suite 316
Atlanta, GA 30341
(770) 458-5554
This nonprofi t organization provides information and patient services

for children with brain tumors. Services include family support
and education programs, public awareness and information
activities, a telephone support network, and regular meetings and
recreational events for children and their families. BTFC also funds

The Brain Tumor Society
124 Watertown Street, Suite 3-H
Watertown, MA 02472
(617) 924-9997
(800) 770-8287
[email protected]
The Brain Tumor Society provides information about brain tumors

and related conditions for patients and their families. They offer

Page 208

Index 201

fatigue 46
foods to avoid 47
hair loss 48
internal radiation 44
long-term side effects 46
“moist reaction” in skin 44
mouth pain 48
nausea and vomiting 56–57
salt and baking soda solution 49
skin changes 48
skin irritation 44
sore jaw 49
swallowing problems 48
tooth decay 49

radiation treatment, side effects 44–46.
See also radiation treatment; radiation
treatment, coping with side effects

appetite loss 47
bladder irritation 46, 50
blood changes 45, 49
breast or shoulder sensitivity 49
breast problems 45
chest problems 45
diarrhea 47–48
dry mouth 49
fatigue 44, 46
gastrointestinal problems 45, 47–48
hair loss 45, 48
handling. See radiation treatment,

coping with side effects
radioactive fallout 15
radiologists 6
radon gas 16
raspberries 70
Recombivax HB 67
rectum, screening 75–76
recurrence, defined 9
red wine 70
Relay for Life 85
remission, defined 9
research, national organizations 148–150
rhabdomyosarcoma (RMS) 30–31
risk factors 3, 10, 12–19

age 13
alcohol 17–18
chemicals 16
defined 12
diet 18
exercise, lack of 18
genetic factors. See genetic factors
immune system, weakened 18–19
ionizing radiation 15–16
obesity 18
radiation treatment 16

sex hormones 17
smoking 14
sunlight 15
toxins 16
viruses 16
X-rays 16

RMS. See rhabdomyosarcoma (RMS)
rosemary 70

salt and baking soda solution 49

defined 2
national organizations 150

scarves 36

breast cancer 74
cervix 74–75
colon cancer 75–78
rectum 75–76

seaweed 70
sex hormones as cancer risk factor 17
sexual practices and cancer 66–67

HPV virus 66–67
side effects of treatments. See also

chemotherapy treatment, side effects;
radiation treatment, side effects

coping with. See chemotherapy
treatment, coping with side
effects; radiation treatment, cop-
ing with side effects

Ewing’s sarcoma 29
germ cell tumors 28
osteosarcoma 29
overview 8

sigmoidoscopy 75
skin cancer

national organizations 150
and sunburn 73

skin changes
chemotherapy side effect 57–58
radiation side effect 48

skin irritation, radiation side effect 44

as cancer risk factor 14, 73
quitting, help for 15

social workers 6
sore jaw, radiation side effect 49
sore mouth, chemotherapy side effect 57,

sore throat, chemotherapy side effect 61
soy products 70–71
state governments, Web sites 92–93

Page 209

202 Index

states, cancer centers 156–170

children diagnosed with cancer

hopeful news 13
incidence 4
mortality rate 5
prevalence 4
significance of 3–5

stem cell transplantation 6, 8
stomatitis, chemotherapy side effect 57
sunburn and cancer 73
sunlight as cancer risk factor 15
support groups 34, 83
surgery 7
surgical oncologists 6
survivors, national organizations 110–111,

swallowing problems, radiation side effect

sweet potatoes 71

Ewing’s sarcoma 29
germ cell tumors 28
osteosarcoma 28
rhabdomyosarcoma (RMS) 31

talking about problem 33–34
teas 71
testicular cancer, national organizations

thyroid cancers, national organizations

tomatoes 71
tooth decay, radiation side effect 49
toxins as cancer risk factor 16
tracing cancer process, genetic factors

treatments 6

biological therapy 6, 8
brain tumors 30
chemotherapy. See chemotherapy
Ewing’s sarcoma 29
germ cell tumors 28
Hodgkin’s disease 31
hormone therapy 6–8
leukemia 29–30
lymphoma 31
osteosarcoma 28

overview 5–8
protocol 6–7
radiation treatment. See radiation

rhabdomyosarcoma (RMS) 31
side effects, generally 8
stem cell transplantation 6, 8
surgery 6, 7
and type of cancer 1–2

tumor, defined 2
tumor suppressor genes 19, 21 35
types of cancer most common in teens

brain tumors 30
Ewing’s sarcoma 29
germ cell tumors 27–28
leukemia 29–30
lymphoma 31
osteosarcoma 28–29
rhabdomyosarcoma (RMS) 30–31

urinary tract cancers, national

organizations 152–153

vaccinations 63

Gardasil 66
hepatitis B vaccine 67

vegetables 67
viruses as cancer risk factor 16
visiting patients

internal radiation, person having 43
volunteering at hospital or clinic 84
vomiting. See nausea and vomiting
vulvar cancer, national organizations 153

wigs 36

mail-order options 156
wine, red 70
wish fulfillment groups 153–154

X-rays as cancer risk factor 16

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