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Page 1

LUND UNIVERSITY

PO Box 117
221 00 Lund
+46 46-222 00 00

Informal caregivers of older persons with dementia in eight European countries.
Experiences, support, well-being and burden.

Lethin, Connie

2016

Document Version:
Publisher's PDF, also known as Version of record

Link to publication

Citation for published version (APA):
Lethin, C. (2016). Informal caregivers of older persons with dementia in eight European countries. Experiences,
support, well-being and burden. Lund: Lund University: Faculty of Medicine.

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Page 2

Lund University, Faculty of Medicine
Doctoral Dissertation Series 2016:94

ISBN 978-91-7619-320-4
ISSN 1652-8220

Informal caregivers to older persons
with dementia
This thesis emphasize that informal caregivers of persons with dementia needs
formal care to be proactive and deliver available care and support early in the
course of the disease. Mapping the health care and social service systems is a
valuable tool for evaluating existing systems for policy making. Professionals
should be aware about what factors are associated with informal caregivers’
psychological well-being and burden to provide proper care and support, and
to promote a healthy transition in the caregiving role and through the course
of the dementia disease.

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Informal caregivers of older
persons with dementia in eight
European countries
Experiences, support, well-being and burden
CONNIE LETHIN

DEPARTMENT OF HEALTH SCIENCES | LUND UNIVERSITY 2016

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Bertand, R.M., Fredman, L. & Saczynski, J. (2006). Are all caregivers created equal?
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Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia.
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With Dementia in Europé. J Nurs Scholarsh, 47(5), 407-416.
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Chappell, N.L., & Reid, R.C. (2002). Burden and well-being among caregivers:
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Cuéllar-Flores, I., Sánchez-López, M.P., Limiñana-Gras, R.M., & Colodro-Conde, L.
(2014). The GHQ-12 for the assessment of psychological distress of family
caregivers. Behav Med, 40(2), 65-70. doi: 10.1080/08964289.2013.847815.

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& Büscher, A. (2014). Which need characteristics influence healthcare service
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Information on public health.

Edvardsson, D., Sandman, P.O., & Borel, L. (2014). Implementing national
guidelines for person-centered care of people with dementia in residential aged
care: effects on perceived person-centeredness, staff strain, and stress of
conscience. Int. Psychogeriatr. doi: 10.1017/S1041610214000258.

Feast, A., Moniz-Cook, E., Stoner, C., Charlesworth, G., & Orrell, M. (2016). A
systematic review of the relationship between behavioral and psychological
symptoms (BPSD) and caregiver well-being. Int Psychogeriatr, 27,1-14. [Epub
ahead of print]

Page 179

Lund University, Faculty of Medicine
Doctoral Dissertation Series 2016:94

ISBN 978-91-7619-320-4
ISSN 1652-8220

Informal caregivers to older persons
with dementia
This thesis emphasize that informal caregivers of persons with dementia needs
formal care to be proactive and deliver available care and support early in the
course of the disease. Mapping the health care and social service systems is a
valuable tool for evaluating existing systems for policy making. Professionals
should be aware about what factors are associated with informal caregivers’
psychological well-being and burden to provide proper care and support, and
to promote a healthy transition in the caregiving role and through the course
of the dementia disease.

Prin
ted

b
y M

ed
ia-Tryck, Lu

n
d

U
n

iversity 2
0

1
6

N
o

rd
ic Eco

lab
el 3

0
4

1
0

9
0

3

9
7
8
9
1
7
6

1
9
3
2
0
4

C
O

N
N

IE
LE

T
H

IN



In

form
al caregivers of older person

s w
ith

dem
entia in

eight E
u

ropean
cou

ntries

94

Informal caregivers of older
persons with dementia in eight
European countries
Experiences, support, well-being and burden
CONNIE LETHIN

DEPARTMENT OF HEALTH SCIENCES | LUND UNIVERSITY 2016

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